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What Advice Are You Grateful To Share With Others About Desmoid Tumor?
Thank you that’s great advice!
Is There A Neurologist In Baton Rouge, LA That Specializes In Treating Desmoid Tumors?
Hey @A MyDesmoidTumorTeam Member - here's what I found online: In Baton Rouge, while there may not be neurologists specifically specializing in desmoid tumors, The NeuroMedical Center offers… read more
Looking For A Neurologist In Baton Rouge, Louisiana Who Has Experience Treating Desmoid Tumors.
My Balance Continues To Deteriorate, Could This Be A Result Of The Desmoid Tumor?
JenniferLe posted about taking estrogen, that supposedly makes desmoid
tumors grow more aggressively from what I have read and what my doctors
said. I don't think this is info I should post. I am not… read more
What’s One Thing About Desmoid Tumor That People Rarely Discuss But Should?
There are many questions never asked. The only stupid question is the one that someone might have but doesn't ask. I would have to say that it would be about sex. Your doctor probably won't bring it… read more
Is Anyone Else Doing Hormonal Replacement Therapy And Having To Take Estrogen? What Has Been Your Experience?
My Desmoid Tumour has most likely resulted from something hormones related. I am a woman with Turner's Syndrome, which requires me to take birth control pills as a form of Hormonal replacement because my body cannot develop Estrogen on it's own. Due to COVID and other reasons, I have been off this medication for many years now and I have been consulting with various Drs, like a gynecologist and my endocrinologist and my oncologist on whether I should continue to take birth control pills or… read more
It's understandable to be concerned about the impact of estrogen on desmoid tumors, especially given your unique medical history. Here are some key points from my knowledge base that might help:
-… read more
What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃
Choose from all food groups and colors. Stay away from trans and hydroginated fats. Use butter and olive oil. The body needs it for hormone production.
Do You Follow A Specific Diet To Help With Desmoid Tumor?
I had no choice as I have so many health problems it is mind boggling to realize that I am still alive and managing most. I have besides that cancer, diabetes, Chronic kidney disease, stage 4 but not… read more
Which Desmoid Tumor Symptom Surprised You The Most?
The fortunate part is I’ve been told once I turn 45, the tumors seem to go dormant. Up until that point, I had gone thru chemo 5 times and numerous surgeries to remove the tumor as well as the organs… read more
What Coping Strategies Work Best For Desmoid Tumors? 🌟💪
Share your experiences with pain management, emotional support, or lifestyle adjustments. Your strategies could help someone else in their journey!
Comment below with your coping tips and let’s support each other! 💬
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