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Real members of MyDesmoidTumorTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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What Are Your Tips For Staying Active While Living With A Desmoid Tumor?

By MyDesmoidTumorTeam · 7 answers

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What Does Life Feel Like Taking Nirogacestat And Is The Fatigue And Other Side Effects Manageable?

By A MyDesmoidTumorTeam Member · 1 answer

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I Have Been Diagnosed With A Desmoid Tumor In My Trapezius Muscle. Anyone Else Been Diagnosed In This Area Who Has Info To Share?

By A MyDesmoidTumorTeam Member · 14 answers

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I Am Desperately Searching For Someone Who Also Had A Desmoid Tumor Radical Surgery On The Abdominal Wall ?

By A MyDesmoidTumorTeam Member · 3 answers

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MyDesmoidTumorTeam is the social network for those living with desmoid tumors. Get the emotional support you need from others like you, and gain practical advice and insights on managing treatment or therapies for desmoid tumor. MyDesmoidTumorTeam is the only social network where you can truly connect, make real friendships, and share daily ups and downs in a judgement-free place.

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