Connect with others who understand.

Sign up Log in
Quick Links
Q&A Resources Treatments A-Z Help Center Guidelines Crisis Accessibility
About MyDesmoidTumorTeam
What is This Site Terms of Use Privacy policy
Powered By

Questions & Answers

Get practical advice and insights from people who understand

Real members of MyDesmoidTumorTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

I Would Like To Have A Trail For My Study??

By A MyDesmoidTumorTeam Member • 1 answer

I Have Neurofibromatosis. Is This The Same As Desmoid Tumors?

By A MyDesmoidTumorTeam Member • 1 answer

Is Anyone Else Doing Hormonal Replacement Therapy And Having To Take Estrogen? What Has Been Your Experience?

By A MyDesmoidTumorTeam Member • 1 answer

What’s Your Biggest Challenge In Managing A Desmoid Tumor? 🌱💪

By A MyDesmoidTumorTeam Member • 1 answer
29 questions

What Are Some Things That You Wish Your Friends And Family Knew About Living With Desmoid Tumor?

A MyDesmoidTumorTeam Member asked a question 💭
San Francisco, CA
February 27
•
Be the first to like/hug

How Do You Manage The Pain And Discomfort Associated With Desmoid Tumor?

A MyDesmoidTumorTeam Member asked a question 💭
San Francisco, CA
February 27
•
View reactions

How Did You First Discover You Had Desmoid Tumor, And What Was Your Initial Reaction?

A MyDesmoidTumorTeam Member asked a question 💭
San Francisco, CA
February 27
•
Be the first to like/hug
A MyDesmoidTumorTeam Member

When I heard the word "tumor" I was scared. But the doctors assured me it wasn't cancer. I discovered my tumor after it was quite large and I was in surgery within days of the discovery. Luckily… read more

March 6
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in