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Real members of MyDesmoidTumorTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Is Anyone Else Doing Hormonal Replacement Therapy And Having To Take Estrogen? What Has Been Your Experience?

A MyDesmoidTumorTeam Member asked a question 💭
Vancouver, BC

My Desmoid Tumour has most likely resulted from something hormones related. I am a woman with Turner's Syndrome, which requires me to take birth control pills as a form of Hormonal replacement because my body cannot develop Estrogen on it's own. Due to COVID and other reasons, I have been off this medication for many years now and I have been consulting with various Drs, like a gynecologist and my endocrinologist and my oncologist on whether I should continue to take birth control pills or… read more

November 1 (edited)
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A MyDesmoidTumorTeam Member

It's understandable to be concerned about the impact of estrogen on desmoid tumors, especially given your unique medical history. Here are some key points from my knowledge base that might help:

- Estrogen and Desmoid Tumors: Desmoid tumors are more common in females due to higher estrogen levels. Estrogen can promote the Show Full Answer

It's understandable to be concerned about the impact of estrogen on desmoid tumors, especially given your unique medical history. Here are some key points from my knowledge base that might help:

- Estrogen and Desmoid Tumors: Desmoid tumors are more common in females due to higher estrogen levels. Estrogen can promote the growth and division of desmoid tumor cells.
- Hormonal Replacement Therapy: If you have a desmoid tumor, it's crucial to discuss the use of estrogen-containing medications, like birth control pills, with your healthcare providers. High estrogen levels can increase the risk of developing desmoid tumors.
- Alternative Treatments: Anti-estrogen medications, such as tamoxifen, have been used to treat desmoid tumors by blocking estrogen's effects. However, this approach is not widely used anymore due to limited effectiveness.
- Consulting Specialists: It's essential to continue consulting with your gynecologist, endocrinologist, and oncologist to find the best treatment plan tailored to your needs.

Given the complexity of your situation, it's best to follow the advice of your healthcare team. They can provide personalized recommendations based on your overall health and specific medical conditions.

November 1

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