What’s Your Biggest Challenge In Managing A Desmoid Tumor? 🌱💪
Living with a desmoid tumor can bring unique obstacles. Share what has helped you manage your symptoms or cope with the emotional impact. 💬 #Question
My grandmother used to have a saying - you can stay in bed and cry or get out of it and live your life. I choose to get out of bed. Days may not be great, but at least I am still alive doing what I can.
My Mother Is About To Start Ogsiveo For A Non-surgical Desmoid Tumor At The Top Of One Of Her Lungs. She Has Already Had Radiation.
Is Anyone Else Doing Hormonal Replacement Therapy And Having To Take Estrogen? What Has Been Your Experience?
I Was Diagnosed Last December Of 2023 And Had Surgery In January Of 2024. I Found Another Tumor Above The Other One I Had Removed. I’m Havi