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Real members of MyDesmoidTumorTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What’s Your Biggest Challenge In Managing A Desmoid Tumor? 🌱💪

A MyDesmoidTumorTeam Member asked a question 💭
San Francisco, CA

Living with a desmoid tumor can bring unique obstacles. Share what has helped you manage your symptoms or cope with the emotional impact. 💬 #Question

3 days ago
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A MyDesmoidTumorTeam Member

My grandmother used to have a saying - you can stay in bed and cry or get out of it and live your life. I choose to get out of bed. Days may not be great, but at least I am still alive doing what I can.

3 days ago

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