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What’s Your Biggest Challenge In Managing A Desmoid Tumor? 🌱💪
Living with a desmoid tumor can bring unique obstacles. Share what has helped you manage your symptoms or cope with the emotional impact. 💬 #Question
When there is nothing to do, "crying over spilled milk" doesn't make it better. Do what you can while you can
Scar tissue. I had numerous tumors grow thru organs which resulted in over 10 major abdominal surgeries over a 15 year period. A doctor at Denver General Hospital removed so much scar tissue this past March that I lost over two pant sizes. I would see if there’s a way to minimize the buildup of scar tissue. I had so much it closed off the ureter to my right kidney and I now only have one functional kidney
My grandmother used to have a saying - you can stay in bed and cry or get out of it and live your life. I choose to get out of bed. Days may not be great, but at least I am still alive doing what I can.
My New Desmond Tumor Diagnosis (abdomen) I Believe Resulted From 40 SRBT Salvage Radiation Sessions While On ADT. Anyone Have Similar?
What’s Helped You Most Emotionally When Dealing With A Desmoid Tumor? 💬💗
What About Giving This To A 4-year Old With A Desmond Tumor On Her Face, Causing Difficulty Opening Her Mouth Due To Jaw Being Affected? Lee
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