What’s Your Biggest Challenge In Managing A Desmoid Tumor? 🌱💪
Living with a desmoid tumor can bring unique obstacles. Share what has helped you manage your symptoms or cope with the emotional impact. 💬 #Question
When there is nothing to do, "crying over spilled milk" doesn't make it better. Do what you can while you can
Scar tissue. I had numerous tumors grow thru organs which resulted in over 10 major abdominal surgeries over a 15 year period. A doctor at Denver General Hospital removed so much scar tissue this past March that I lost over two pant sizes. I would see if there’s a way to minimize the buildup of scar tissue. I had so much it closed off the ureter to my right kidney and I now only have one functional kidney
My grandmother used to have a saying - you can stay in bed and cry or get out of it and live your life. I choose to get out of bed. Days may not be great, but at least I am still alive doing what I can.
My Mother Is About To Start Ogsiveo For A Non-surgical Desmoid Tumor At The Top Of One Of Her Lungs. She Has Already Had Radiation.
Is Anyone Else Doing Hormonal Replacement Therapy And Having To Take Estrogen? What Has Been Your Experience?
How Long / How Fast Can A Trauma Oriented Desmoid Tumor Grow?