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How Did You First Discover You Had Desmoid Tumor, And What Was Your Initial Reaction?
When I heard the word "tumor" I was scared. But the doctors assured me it wasn't cancer. I discovered my tumor after it was quite large and I was in surgery within days of the discovery. Luckily they were able to remove the tumor from my abdomen.
My Mother Is About To Start Ogsiveo For A Non-surgical Desmoid Tumor At The Top Of One Of Her Lungs. She Has Already Had Radiation.
Whatβs Your Biggest Challenge In Managing A Desmoid Tumor? π±πͺ
Need Radiation After Surgery
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