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Real members of MyDesmoidTumorTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Are You Frustrated With Finding Effective Treatments For Desmoid Tumor?

A MyDesmoidTumorTeam Member asked a question šŸ’­
San Francisco, CA
June 17
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My Mother Is About To Start Ogsiveo For A Non-surgical Desmoid Tumor At The Top Of One Of Her Lungs. She Has Already Had Radiation.

A MyDesmoidTumorTeam Member asked a question šŸ’­
Meridian, MS
April 25

I Was Diagnosed Last December Of 2023 And Had Surgery In January Of 2024. I Found Another Tumor Above The Other One I Had Removed. Iā€™m Havi

A MyDesmoidTumorTeam Member asked a question šŸ’­
Worcester, MA
November 2

Need Radiation After Surgery

A MyDesmoidTumorTeam Member asked a question šŸ’­
Daytona Beach, FL
July 15
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