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My Mother Is About To Start Ogsiveo For A Non-surgical Desmoid Tumor At The Top Of One Of Her Lungs. She Has Already Had Radiation.

A MyDesmoidTumorTeam Member asked a question 💭
Meridian, MS

My mother is about to start Ogsiveo for a non-surgical desmoid tumor at the top of one of her lungs. She has already had radiation. The oncologist she is using has never prescribed this medication for a patient before, and is therefore unfamiliar with it. We've read the drug information packet, but still would like to know if anyone could share first-hand information on the drug and offer any advice or tips.

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A MyDesmoidTumorTeam Member

Thanks for sharing @A MyDesmoidTumorTeam Member! It sounds like you've been through quite the journey adjusting your treatment, especially with the challenges your kidneys have presented. It's… read more