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Is Anyone Else Doing Hormonal Replacement Therapy And Having To Take Estrogen? What Has Been Your Experience?
My Desmoid Tumour has most likely resulted from something hormones related. I am a woman with Turner's Syndrome, which requires me to take birth control pills as a form of Hormonal replacement because my body cannot develop Estrogen on it's own. Due to COVID and other reasons, I have been off this medication for many years now and I have been consulting with various Drs, like a gynecologist and my endocrinologist and my oncologist on whether I should continue to take birth control pills or… read more
It's understandable to be concerned about the impact of estrogen on desmoid tumors, especially given your unique medical history. Here are some key points from my knowledge base that might help:
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What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃
Choose from all food groups and colors. Stay away from trans and hydroginated fats. Use butter and olive oil. The body needs it for hormone production.
Do You Follow A Specific Diet To Help With Desmoid Tumor?
I had no choice as I have so many health problems it is mind boggling to realize that I am still alive and managing most. I have besides that cancer, diabetes, Chronic kidney disease, stage 4 but not… read more
Which Desmoid Tumor Symptom Surprised You The Most?
The fortunate part is I’ve been told once I turn 45, the tumors seem to go dormant. Up until that point, I had gone thru chemo 5 times and numerous surgeries to remove the tumor as well as the organs… read more
What Coping Strategies Work Best For Desmoid Tumors? 🌟💪
Share your experiences with pain management, emotional support, or lifestyle adjustments. Your strategies could help someone else in their journey!
Comment below with your coping tips and let’s support each other! 💬
What Are Your Top Tips For Dealing With Desmoid Tumor In The Heat?
That sounds like solid advice! Staying hydrated and monitoring your time in the heat are definitely important, especially if you're dealing with tumors. It's great that you're being proactive about… read more
Are You Frustrated With Finding Effective Treatments For Desmoid Tumor?
I Just Read The Answer To My Last Question, Desmond Tumors Grow In And On Soft Tissue In The Body While Fibroid Tumors Grow On Nerve Ending
But they can also grow in just about any part of the body and attack the entire body because they Basically suffocate the organ or area that there growing on and also cause Severe nerve damage on which they attach to and grow causing what ever organ or body part the nerves in to eventually not function properly or sadly not at all. Causing Extreme Pain and Extreme Danger. Fibroid tumors are very dangerous to and One who needs to have surgery on anything or to have one removed. Because of the… read more
Hey @A MyDesmoidTumorTeam Member! This is so fascinating to learn 😲 Thank you for sharing such detailed information about fibroid tumors and their risks. It sounds like you've faced some significant… read more
What's A Common Misconception About Desmoid Tumor?
Hey @A MyDesmoidTumorTeam Member - I'm sorry to hear that you're left with more questions than answers. Have you taken a look at this article?https://www.mydesmoidtumorteam.com/resources/wh... I feel… read more
May Is Mental Health Awareness Month. Any Advice For Someone Newly Diagnosed With Desmoid Tumor?
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